Children’s Leukodystrophy Book

To support children affected and their siblings

Our children’s book to support the siblings of children diagnosed with childhood cerebral adrenoleukodystrophy (CCALD) is available to order for free.

The book is a tool to be utilised by families following a diagnosis of CCALD which parents can use in family discussions. It is to support children, to build emotional resilience and openness to talk and ask questions following the diagnosis.

If you’d like a copy, please email

To find out more: Our Children’s Book for ALD

Alex - The Leukodystrophy Charity