Children’s Book for CCALD

A free resource for our community

Our Children’s Book is a tool to be utilised by families following a diagnosis of Childhood Cerebral Adrenoleukodystrophy (CCALD), which parents can use in family discussions. It is to support children, to build emotional resilience and openness to talk and ask questions following the diagnosis.

Find out more about the book: Children’s Book Information

To view the online version, please visit: Online Book

You can request a hard copy of the book by emailing

Alex - The Leukodystrophy Charity