Children’s Book for ALD

To support siblings and families of children diagnosed with Childhood Cerebral Adrenoleukodystrophy (CCALD)

Our Children’s Book is a tool to be utilised by families following a diagnosis of Childhood Cerebral Adrenoleukodystrophy (CCALD), which parents can use in family discussions. It is to support children, to build emotional resilience and openness to talk and ask questions following the diagnosis.

To find out more about the book:

To view the online version of the book, please visit:

You can request a hard copy of the book by emailing


Alex - The Leukodystrophy Charity