CCALD Study

Parents with a child diagnosed with CCALD

Are you a parent with a child affected by CCALD? We need your help to provide evidence towards Newborn screening for ALD 💙 The study is to provide insights into the experiences of having a child diagnosed with CCALD.

 

 

To find out more: https://www.alextlc.org/childhood-cerebral-adrenoleukodystrophy-ccald-research-study/

Alex - The Leukodystrophy Charity