CCALD Study Published

Research Article available to view

Last year we collaborated with researchers from Sheffield Hallam University to conduct a research study called ‘The experiences of parents of children diagnosed with cerebral adrenoleukodystrophy’.

The research article has now been published in Wiley Online Library and is available to view.

To read: https://onlinelibrary.wiley.com/doi/10.1111/cch.13184

A huge thank you to everyone who participated in the study and contributed to these vital findings.

Alex - The Leukodystrophy Charity