Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
Rare Diseases Campaign by Medics 4 Rare Diseases Medics 4 Rare Diseases have partnered with MediaPlanet to bring together the Rare Diseases campaign. Read about the importance of research and drug development and the need for access, funding and support to bring together and benefit the Rare Disease Community.
Metabolic Support UK’s report is now available to view What is good quality of life for people living with inherited metabolic disorders?
Join a free webinar by Contact Contact are campaigning to stop disabled children from missing out on free school meals.
Research findings launch webinar: 14th September 14:00-15:30 (BST) A free webinar from the team at Chronic Illness Inclusion and the Disbelief and Disregard project of collected testimonies of healthcare encounters from women, including trans women and non-binary people, with energy limiting conditions (ELCs). Please see event information below:-
Create vlogs to show how social care helps you Information about DCP’s new campaign and how to get involved:
In response to the government’s “Working Together to Safeguard Children” guidance The government has launched on a revised version on “Working Together to Safeguard Children”, the multi-agency guidance on children’s social care. The guidance must promote support for disabled children. Families are so often underrepresented in consultation responses.
