For our community members affected by GAN
We wanted to share news we’ve received with our community members affected by giant axonal neuropathy (GAN). Taysha has made the difficult decision to discontinue the development of the investigational gene therapy candidate, TSHA-120, for the treatment of GAN.
Our Research Summary for September 2023 is ready to view.
Promising recent research announcment from the Yaya Foundation for 4H Leukodystrophy.
“Dr. Genevieve Bernard and her team at the MyeliNeuroGene Laboratory in the Research Institute of the Centre universitaire de santé McGill | McGill University Health Centre has successfully created the first representative animal model of 4H Leukodystrophy.
Research findings launch webinar: 14th September 14:00-15:30 (BST)
A free webinar from the team at Chronic Illness Inclusion and the Disbelief and Disregard project of collected testimonies of healthcare encounters from women, including trans women and non-binary people, with energy limiting conditions (ELCs). Please see event information below:-
Our Research Summary for August 2023 is ready to view.
Recently launched newsletter
Are you or a loved one affected by Adult-onset Leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), also known as HDLS and CSF1R)?