Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
January 2024 Our Research Summary for January 2024 is ready to view.
NIHR Patient Engagement Opportunity to shape a research study A potential engagement opportunity for families or people living with AGS, to feed into the development of a potential clinical trial that may be coming to the UK.
CTX Alliance held a webinar with Mirum Pharmaceuticals Earlier this month, CTX alliance held a webinar to provide an opportunity for the CTX community to learn about Mirum Pharmaceuticals recent RESTORE study results evaluating Chenodal (chenodeoxycholic acid) and the importance for CTX patients.
Disabled Children’s Partnership first children and young people’s survey We wanted to share details of the Disabled Children’s Partnership’s first children and young people’s survey.