Newborn screening development in US
Screening for Krabbe Disease Another positive development in the US for newborn screening for leukodystrophy.
Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
Screening for Krabbe Disease Another positive development in the US for newborn screening for leukodystrophy.
Introduced to first state in US Illinois has become the first state in the US to screen newborns for Metachromatic Leukodystrophy (MLD).
Find out about our campaign to get ALD added to the newborn screening programme in the UK Wednesday 28th June is International Neonatal Screening Day. This day highlights the vital need to screen for conditions at birth, including leukodystrophy. We continue to campaign to get ALD added to the newborn screening programme in the UK. To find out more, visit our campaign page: Screen Our Boys
ALD has been added to their newborn screening panel The Alabama Department of Public Health (ADPH) has recently added X-linked Adrenoleukodystrophy (X-ALD) to Alabama’s newborn screening panel. This change demonstrates the vital need for newborn screening for ALD. We will continue to campaign for ALD to be added to the newborn screening programme in the UK
By Sara Hunt, Our CEO Our CEO, Sara’s, article ‘Why Teddi’s MLD gene therapy story should provoke immediate change for newborn screening’ has been featured in National Health Executive Magazine.
“Newborn screening for tyrosinaemia – are we making headway?” Article This excellent article by Nick Meade (Director of Policy, Genetic Alliance UK) discusses our efforts to get ALD added to the newborn screening programme and whether the recent announcement for tyrosinaemia could be a positive sign for ALD.