News - leukodystrophy

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Managing Leukodystrophy in Employment Workshop

September 2023

Do you work and have leukodystrophy? Would you like to find out more about what reasonable adjustments your employer should offer? We are holding an informational workshop for individuals affected by leukodystrophy who are currently employed or who may be seeking employment in the future. The workshop is suitable for people of all ages including students to help them prepare for working. However you must be registered with the charity to be able to attend.

Read more

Another Ask the Community for September

September 2023

Share your suggestions and past experiences A community member is asking for recommendations for holiday accommodation in the UK suitable for a family with a 14 year old wheelchair bound boy with ALD.

Read more

News Round-Up

September 2023

Our September edition is available Our September 2023 News Round-Up will be arriving in your inboxes today.

Read more

Research GAN Update

September 2023

For our community members affected by GAN We wanted to share news we’ve received with our community members affected by giant axonal neuropathy (GAN). Taysha has made the difficult decision to discontinue the development of the investigational gene therapy candidate, TSHA-120, for the treatment of GAN.

Read more