News - leukodystrophy

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Dutch ALD newborn screening

September 2023

Starts on 1st October in the Netherlands From 1st October Dutch ALD Newborn screening is going nationwide. This is a promising development in the Netherlands.

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Research GAN Update

September 2023

For our community members affected by GAN Taysha are hosting a community webinar on Wednesday 4th October 6:30pm.

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Leukodystrophy ACTIVITIES Month Posts

September 2023

Shared by our community members, staff and trustees 💙 Below are posts which have been shared on our social media channels throughout September: Our wonderful community member and volunteer, Nick, enjoys being on a sunny beach in Spain.

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Rare Diseases Campaign by Medics 4 Rare Diseases

September 2023

Rare Diseases Campaign by Medics 4 Rare Diseases Medics 4 Rare Diseases have partnered with MediaPlanet to bring together the Rare Diseases campaign. Read about the importance of research and drug development and the need for access, funding and support to bring together and benefit the Rare Disease Community.

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