News - events

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Online Community Meeting

February 2024

Join us on Thursday 14th March 14:00-15:00 Our next online community meeting is on Thursday 14th March 14:00-15:00.

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Join a Rare Disease Day 2024 Reception

February 2024

Join one of the Rare Disease Day Receptions being held by Genetic Alliance Genetic Alliance UK are hosting the Rare Disease Day Receptions for Rare Disease Day on Thursday 29th February.

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Rare Disease Day 2024

February 2024

Information about how you can get involved this year It’s less than three weeks until Rare Disease Day on Thursday 29th February. We are sharing about the different ways you can get involved.

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Connecting Communities

February 2024

Online meeting hosted in collaboration with ALD Connect We are excited to announce that we are teaming up with ALD Connect to host a community building call. The Connecting Communities meeting will take place on Sunday 25th February 3pm (GMT) and will provide an opportunity for people to connect and engage with the broader ALD community.

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Online Community Meeting

February 2024

Join us on Thursday 15th February 13:00-14:00 We have an upcoming online community meeting on Thursday 15th February 13:00-14:00 (GMT).

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