News - events

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Managing Leukodystrophy in Employment Workshop

September 2023

Do you work and have leukodystrophy? Would you like to find out more about what reasonable adjustments your employer should offer? We are holding an informational workshop for individuals affected by leukodystrophy who are currently employed or who may be seeking employment in the future. The workshop is suitable for people of all ages including students to help them prepare for working. However you must be registered with the charity to be able to attend.

Read more

ALSP Webinar

September 2023

Vigil Neuro holding community webinar Vigil Neuroscience’s ALSP community webinar to be held on September 26, 2023 from 17:00-17:45 PM (BST)/12:00 – 12:45 PM EST. The program objectives will include:

Read more

September is Leukodystrophy Awareness Month

August 2023

From 1st to 30th September Leukodystrophy Awareness Month takes place every year throughout the whole of September. It is a time for everyone affected by a leukodystrophy to come together and raise awareness about these devastating rare conditions.

Read more