Here are the latest news stories from Alex TLC and about topics we think you'll find useful.
Shared by our community members, staff and trustees 💙 Below are posts which have been shared on our social media channels throughout September: Our wonderful community member and volunteer, Nick, enjoys being on a sunny beach in Spain.
Rare Diseases Campaign by Medics 4 Rare Diseases Medics 4 Rare Diseases have partnered with MediaPlanet to bring together the Rare Diseases campaign. Read about the importance of research and drug development and the need for access, funding and support to bring together and benefit the Rare Disease Community.
Metabolic Support UK’s report is now available to view What is good quality of life for people living with inherited metabolic disorders?
Our CEO, Sara, attending the event The event will look at ways to improve organisational equality, diversity and inclusion (EDI) and how we engage with under-represented communities.
And feedback from our August community ask We’d like to share our Ask Our Community for September:
