ALD Archives

Attending the SfE BES Conference

November 2023

Helping to raise awareness of ALD and adrenal insufficiency Our Support Services Manager, Karen, and Research Analyst, Kristina, are attending the Society for Endocrinology BES Conference from today to Wednesday. They are hoping to raise awareness of the link between ALD and adrenal insufficiency. SfE BES is the annual conference of the Society for Endocrinology, bringing together the best of basic science, translational research, clinical investigation and clinical practice.

ALD Connect Conference

November 2023

Friday 3rd and Saturday 4th November ALD Connect Conference is on Friday 3rd and Saturday 4th November.

CCALD Study Published

October 2023

Research Article available to view Last year we collaborated with researchers from Sheffield Hallam University to conduct a research study called ‘The experiences of parents of children diagnosed with cerebral adrenoleukodystrophy’.

Newborn screening study

October 2023

ALD and MLD to be conditions included in the Generation Study We have some promising news we wanted to share.

Global Make Some Noise Day

October 2023

On Friday 6th October! It’s Global’s Make Some Noise Day on Friday 6th October. They have helped to change over 175,000 lives through 440 grassroots projects. Thank you to for supporting small charities – it made a massive difference to us.

Dutch ALD newborn screening

September 2023

Starts on 1st October in the Netherlands From 1st October Dutch ALD Newborn screening is going nationwide. This is a promising development in the Netherlands.