News - ALD Link

Here are the latest news stories from Alex TLC and about topics we think you'll find useful.

Attending the SfE BES Conference

November 2023

Helping to raise awareness of ALD and adrenal insufficiency Our Support Services Manager, Karen, and Research Analyst, Kristina, are attending the Society for Endocrinology BES Conference from today to Wednesday. They are hoping to raise awareness of the link between ALD and adrenal insufficiency. SfE BES is the annual conference of the Society for Endocrinology, bringing together the best of basic science, translational research, clinical investigation and clinical practice.

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Adrenal Insufficiency Emergency Guidelines Update

May 2023

Update to the emergency guidelines section on the BIMDG website Alex TLC has worked tirelessly with The British Inherited Metabolic Diseases Group (BIMDG), requesting for them to include emergency guidelines for patients with adrenoleukodystrophy (ALD) who also have adrenal insufficiency (Addison’s disease) in their emergency guidelines section on the BIMDG website.

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12 Days of Christmas – Day 9

December 2021

On our 9th Day of Christmas, our Support Services Manager, Karen Harrison, gives us an insight into her family’s Christmas. My identical twin sons, Cameron, and Alexander, were diagnosed with childhood onset cerebral adrenoleukodystrophy (ALD) in 2002, up until then we had just been a normal family enjoying life…

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12 Days of Christmas – Day 4

December 2021

On our 4th Day of Christmas, we remember a cheeky, lovable boy called Lewis. Lewis was one of a kind, cheeky but so lovable. He was diagnosed at a young age of around 3/4 with autism and ADHD.

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