Update to the emergency guidelines section on the BIMDG website
Alex TLC has worked tirelessly with The British Inherited Metabolic Diseases Group (BIMDG), requesting for them to include emergency guidelines for patients with adrenoleukodystrophy (ALD) who also have adrenal insufficiency (Addison’s disease) in their emergency guidelines section on the BIMDG website.
No changes to the formulation
The previously branded ‘Solu Cortef’ hydrocortisone injection will now be known as ‘Hydrocortisone 100mg Powder for Solution for Injection or Infusion 1x2ml (vial with diluent)’ as it changes to the generic version.
Affected by Adrenal Insufficiency? Living in the USA?
For our community members affected by Adrenal Insufficiency living in the USA, United4Rare have a free conference from 30th March to 1st of April in Portland.
No further manufacturing of injectable Hydrocortisone Sodium Phosphate
We have been informed that there will be no further manufacturing of injectable Hydrocortisone Sodium Phosphate by Advanz Pharma until 2023.
Information for Young People
Addison’s Disease Self-Help Group have some great information and advice for young people affected by either Addison’s or adrenal insufficiency.
Our team of medical professionals
We’d like to welcome Professor Arlt to our team of medical professionals. We are lucky to have such an eminent endocrinologist supporting us.