BPNA Annual Conference

Sara and Karen will be presenting at the conference

Sara, Our CEO, and Karen, Our Support Services Manager, are attending the BPNA (British Paediatric Neurology Association) Annual Conference in Edinburgh this week! They will be presenting about our involvement as the patient representative in the development of the IWMD service and registry


The BPNA conference provides an opportunity to raise awareness of the charity and our involvement in the IWMD service and registry – with professionals who specialise in the care of children with neurological disorders.


At the BPNA conference, our CEO, Sara, presented a case study about our experience of working with the NHS on developing the IWMD Service and Registry. To view a PDF of our case study: IWMD Poster


At the BPNA conference, Sara presented a case study about patient and professional collaborative working for the IWMD Service and Registry, and Charlotte presented our CCALD Impact Study.

To view a PDF of our IWMD collaboration case study: IWMD Poster

To view the summary report from our CCALD Impact Study: CCALD Summary Report

Alex - The Leukodystrophy Charity