Book of Poems

Leukodystrophy and Motherhood

One of our beneficiaries has written a wonderful and powerful book of poems about leukodystrophy and motherhood. She wants to share it with other families affected by rare disease to help others by letting them know they aren’t alone.

It was recently featured in America in their disability book review campaign and reviewed by one of their authors:

We have some copies available for free within the charity so please get in touch by emailing

It can also be purchased on Amazon: Motherhood: Plot Twist
The author is kindly donating 40% of profits from any book purchases made between 21st May until 31st August 2022 to Alex TLC. 

Please be aware that these poems are written by a mother of a symptomatic child.

You can find the author on socials:
Instagram – @aislingfinnwriter
Facebook – Aisling Finnwriter

Alex - The Leukodystrophy Charity