Helping to raise awareness of this condition

One of our beneficiaries, Michael Conway, has helped to raise awareness of Adrenoleukodystrophy (ALD). By sharing his story with many newspapers and rare disease organisations it will ensure more people know about ALD.

Click on the links to read the stories below:

https://www.glasgowtimes.co.uk/news/19954834.renfrew-man-raises-awareness-ald-rare-disease-day/

https://www.dailyrecord.co.uk/news/local-news/scots-grandad-living-ultra-rare-23533323

https://www.pressreader.com/uk/paisley-daily-express/20210220/281694027492343

https://patientworthy.com/?s=michael+conway&lang=en

https://patientworthy.com/2021/02/26/grandad-raising-awareness-for-adrenoleukodystrophy/

https://www.thenational.scot/news/18561920.patient-the-nhs-saved-life-baby-still-it/

https://patientworthy.com/?s=michael+conway&lang=en

https://patientworthy.com/2021/02/26/grandad-raising-awareness-for-adrenoleukodystrophy/

https://patientworthy.com/2019/06/27/an-adrenoleukodystrophy-patient-story-every-day-is-like-christmas-day/

http://www.heraldscotland.com/life_style/real_life/16190852.What_it_feels_like_____to_live_with_a_terbroomminal_disease/

https://www.sundaypost.com/fp/20000-1-illness-adrenoleukodystrophy-taught-renfrew-man-to-cherish-his-family-moments/

https://www.dailyrecord.co.uk/news/scottish-news/rare-illness-killing-me-grandad-12197196

http://www.clydebankpost.co.uk/news/16240349.Workmates__support_for_colleague_with_rare_illness/

https://patientworthy.com/2018/04/16/speaking-about-live-with-ald/?utm_campaign=coschedule&utm_source=facebook_page&utm_medium=Patient%20Worthy&utm_content=This%20Man%20is%20Speaking%20Out%20About%20What%20it%27s%20Really%20Like%20to%20Live%20With%20ALD

https://www.metabolicsupportuk.org/michaels-story-living-with-ald/

http://www.greenocktelegraph.co.uk/news/15544788.Brave_dad_searching_for_a_miracle_cure/?ref=fbshr

http://www.greenocktelegraph.co.uk/news/15423914.Port_dad_tells_of_agony_of_living_with_ALD/

https://raremark.com/adrenoleukodystrophy/articles/michaels-story-genetic-testing-for-ald–515