We’d love to hear from you…what leukodystrophy or rare disease articles, blogs and podcasts do you like to follow or would you recommend for our community?
We have a few we would like to share:
Medics 4 Rare Diseases have an article called ‘From Genetics Undergraduate to Paediatric Registrar’, which discusses a Paediatric Registrar’s rare disease journey, including how a talk from Karen, Our Support Services Manager, was a pivotal moment in her own Rare Disease Journey. To read: Medic4Rare Article
Rarely Heard is a rare disease podcast created by Same but Different and Beacon for Rare Diseases. It provides a way to share the stories, experiences, knowledge, insights and voices of those living with some of the world’s rarest diseases. Find out more: Rarely Heard Podcast
We look forward to hearing and sharing your suggestions, please send them to firstname.lastname@example.org