Ask our Community for May

Another ask from a community member

We have another Ask Our Community for May. One of our community members is asking for some advice. Her adult son wants to write a book about his life with Adrenoleukodystrophy (ALD). He is unable to write the book himself and would need support when developing the content of the book.

Does anyone have any ideas of what she needs to do:

  • Who could she contact?
  • What should be the first steps to take?
  • Who could support them with this project?

We look forward to hearing your suggestions – please send them to


Alex - The Leukodystrophy Charity