ARDEnt Report: Making the Unseen Seen

ARDEnt (Action for Rare Disease Empowerment) have produced a report focusing on rare disease and the lessons learned from the COVID-19 pandemic.

COVID-19 swept the globe during 2020 leading to significant morbidity and mortality, impacting all aspects of life, including health and social care provision. This report demonstrates how people living with rare conditions were disproportionately affected.

Follow the link to read the full report:


Alex - The Leukodystrophy Charity