ALSP Newsletter

Recently launched newsletter

Are you or a loved one affected by Adult-onset Leukoencephalopathy with axonal spheroids and pigmented glia (ALSP), also known as HDLS and CSF1R)?

A newsletter called ‘My Complex Genes’, with recent news and research updates, has been launched

If you’d like to receive a copy, please contact us directly by emailing


Alex - The Leukodystrophy Charity