Are you or a family member affected by Alexander Disease? Join our Alexander Disease Focus group and help shape resources we are creating in the charity.
We are going to be creating Alexander Disease resources which are similar to our ALD and AMN booklets. Below are links to a few examples of the booklets:
Being part of our focus group would involve attending an online meeting through zoom with other beneficiaries to discuss development of the resources and reviewing resources sent through via email.
For more information or questions, contact email@example.com