AGS Insight Session

NIHR Patient Engagement Opportunity to shape a research study

A potential engagement opportunity for families or people living with AGS, to feed into the development of a potential clinical trial that may be coming to the UK.

NIHR Clinical Research Network (CRN) are sharing an opportunity to be involved in shaping a commercial research study in AGS by participating in an insight session. They want to hear your experiences of living with, or supporting others with, this condition to ensure that this and future research is as accessible as possible for everyone, by designing it for patients, with patients.

To find out further information about the opportunity: NIHR Patient Engagement – AGS

The deadline for registering is this Monday (29th January).

For any questions or to register your interest, please contact Isabella Darbyshire, Service Coordinator by emailing

Alex - The Leukodystrophy Charity